So our day started out as an "up"! Liam had already been visited by the pediatric surgeon and his intestines had been worked in a little further- less than half an inch can be seen out the top! His belly was a little rounder from the extra parts inside, but that was to be expected. Babies look cute with round tummies!
We had a great nurse today who explained what all to expect after the surgery and then we also got to talk to the nurse practitioner of the surgeon. She explained more of how the surgery would go and estimated his surgery time to be 2pm, lasting about an hour.
After a great morning of loving on Liam, Steve and I left for lunch and I decided to stay back in the room during the early afternoon visit- I was just too exhausted and I wanted to have energy to play with Riley when he came over. Steve went up to NICU on his own and had a great talk with the pediatric surgeon who was making rounds at the same time. He feels really good about what's happening tomorrow after talking with her.
Steve's folks brought Riley over for the afternoon. They went to visit Liam while Steve and I played with Ri. Riley was so proud he had done his homework already in the car so he could play as soon as he got here! We got a good game of HORSE in before the weather turned bad. We had some quiet time in the room and then ate a great turkey and fixin's dinner before it was time for showers and stories. Steve went home with them tonight to get to a meeting at work the next day. He'll come back over when Riley's done with school on Wed.
Of course with Steve gone, I went to the NICU by myself and that's when we had a little "down". When I came in the doctor on duty happened to be assessing him so we had a good chat. We noticed his skin was paler, especially his legs, his feet were purplish again (apparently how he was when he came out) and even one of his hands were purple. Steve and I had also been watching a spot on his intestines that wasn't as pink as the rest earlier that day and the doctor noticed it too. She said she would monitor his blood flow as that was the cause of everything. The pressure of putting his intestines back in can sometimes cause strain on his vascular system causing the purple and paleness. Why did this have to happen on the one night when Steve went away? :( Of course there was nothing I could do, but I felt bad like I let Steve down when he was away because Liam was having a bad night. I know that's not the case but it still felt that way.
She ordered fluids to get the circulation back up, but she said it would make him a little chilly so poor buddy was shivering some. The nurse let me pick him up again for weight calculation and to change his bed. I got to give him lots of kisses and rubbed my cheek to his- we loved it!!! I then got to massage his feet and hands to stimulate blood flow and pile on some blankets so he was snug but not too hot.
He had a good hour of rest listening to his lullaby music and then he started getting fidgety and grimacing (of course right when I was about to leave). I tried to adjust some things to see if it would help and rub his forehead to soothe him, but he would keep squirming every so often like he couldn't get comfy. It's hard to leave him like that but my tummy was hurting because my medicine had run out so I had to get going. It stinks seeing your baby hurting and you can't do anything for him. You can tell he's just kind of over it all- already. Sometimes he doesn't like people touching him too much- I guess he's been poked and prodded enough he just wants everyone to leave him along. I hope when he gets home he lets us get in lots of cuddling and snuggles.
Hopefully after he gets through surgery tomorrow and through recovery, he'll start feeling better. Keep us in your thoughts Wed afternoon!
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