Today's big event was getting discharged from the hospital and moving down the road into the Ronald McDonald House. It's goregous! The new house has over 20 bedrooms in it (a huge improvement over the 9 they had at the old house). There's common living rooms, a huge kitchen with dining tables, tons of donated food (they said don't expect to lose weight here!), a small fitness room, kids play room, game room, computer room, outside playground, half court and putting green, as well as a nursing nook and laundry rooms! We got a room with two beds so Riley can stay with us on weekends if he wants. They all have private baths, TV, and plenty of space for clothes. The staff is very friendly and the house gets a lot of items donated for the family to enjoy (movie tickets and kids activites for example).
As nice as the house is, it was still kind of sad not going home yesterday. We're going to try out the house and see how it goes. It's SO nice being within walking distance (don't worry- Steve's still driving me!) from the hospital. I like getting up to see Liam every chance I can (between naps- still pretty tired!).
Liam is still being tough. There was a lot of waiting around yesterday because they close off his whole section if there's a procedure being done on a baby or if there's an emergency. That part is frustrating, but it's for the best.
Today Daddy got to pick up Liam when he was getting his sheets changed. He must have known it was his dad because as soon as Steve picked him up, Liam's body instantly relaxed and settled into his hands. He even tried to roll toward Steve to get a nuzzle, and it looked like he was smiling! I'm sure it was hard to put that little guy down when he just wants to be cuddled and loved. :)
His intestines continue to make progress in and blood flow still looks good so we're not losing any bowel tissue. Fingers crossed!! No set date on surgery- still Wednesday or Thursday, just depends on how much goes in between now and then. They give Liam pain meds when his bowels get moved down each time so I feel like he's always spacing out when we see him. It'll be fun to see his real personality once he's off the meds.
I asked about the meds, concerned with long term effects, etc. He's still only getting them a couple times a shift (12 hr shifts) and it's in a very small dose- just to take the edge off. He won't be resistent to pain meds in the future and it's not to delay any brain activity or progress. He should be off pain meds a little while after surgery if all goes well so we're not far away from that point.
Pictures are slow for us to upload because we're wanting to be careful about what is posted. Should be some good ones we can crop coming soon!
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